Active Research Surveys


Are you the parent or carer of a miracle baby? Listed below are active research surveys that need your voice!

Research happens in NICUs across Australia, and around the world. Every trial that takes place within Australian NICUs has gone through very strict protocols and guidelines, has had input by NICU parents and has undergone independent ethics approvals.

Your experience, story and journey with your miracle baby or babies is valued. By completing any of the surveys below, you are assisting researchers on the joint mission of advancing health and outcomes for babies born early or sick.

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If you are a researcher, click here to submit a survey

Active Research Surveys:

Behavioural Impacts on Children after the Perinatal Death of a Sibling

As a participant in this research, you can take part in an interview with the researchers, at your convenience, to describe your experiences of perinatal loss (the death of a child due to miscarriage, stillbirth or neonatal death – death within the first 28 days of life) and how it impacted your child/ren that were already born before your loss/es.

To be eligible you meet all of the following;
- be at least 18 years of age or older, fluent in English
- have had existing child/ren at the time you experienced perinatal loss
- the perinatal loss must have been between 6 months and 10 years ago

Your participation would involve completing a one off interview, lasting approximately one hour. All data will be de-identified prior to analysis and publication.

You may not receive a direct benefit from this study, but your participation may help discover ways to better support children and families after perinatal loss.


Most Premature Babies

If you were an extremely premature infant or care for someone who is, INPRES wants to hear from you.

We encourage you to take part in the survey and share your questions about the most premature babies to help guide future research. It will take about 10 minutes to complete and is open to anyone with a personal or work-related connection to premature babies born before 25 weeks of gestation.

A survey has been launched by the International Perinatal Research Partnership (INPRES) to identify the top 10 research priorities for the most premature babies born before 25 weeks of gestation (about 4 months early) in Australia and the UK.


Quality of Kids’ Lives Study – Finding the best way to measure kids’ health

Are you the parent, carer or guardian of a child or young person aged 2-18 years old?

We need your help to take part in an important study the Murdoch Children’s Research Institute is conducting about measuring the health and wellbeing of children and young people. Findings will be used to evaluate new treatments for kids. Taking part will involve completing two surveys.

Interested in participating or want to know more?


HAPP-e is an innovative international study on the health and quality of life of adults born preterm.

So, what do you need to participate? You must be older than 18 years old and have been born before the 37th week of gestation, anywhere in the world.

To participate, access, register and click the link you receive by e-mail.

It’s that easy and you will be contributing to improving knowledge on adult life after preterm birth! 

All adults (18+) born before the 37th week of gestation are invited to register and fill HAPP-e's questionnaire

Fathers Perceptions of Having a Baby in the Neonatal Unit during Covid-19
Have you recently become a dad during the Covid-19 pandemic and was your baby admitted to a neonatal unit or discharged during the pandemic? If you've answered yes, we would like to invite you to participate in this international research survey to explore the perceptions and experiences of fathers of infants who are currently on admission in the neonatal unit or have been discharged during the Covid-19 pandemic. The survey takes 15-20 minutes to complete. 

Survey Link

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