Active Research Surveys

SUPPORT   

Are you the parent or carer of a miracle baby? Listed below are active research surveys that need your voice!

Research happens in NICUs across Australia, and around the world. Every trial that takes place within Australian NICUs has gone through very strict protocols and guidelines, has had input by NICU parents and has undergone independent ethics approvals.

Your experience, story and journey with your miracle baby or babies is valued. By completing any of the surveys below, you are assisting researchers on the joint mission of advancing health and outcomes for babies born early or sick.

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If you are a researcher, click here to submit a survey

Active Research Surveys:

Culturally and Linguistically Diverse (CALD) men’s experiences of perinatal death in Australia

Men from culturally diverse backgrounds may have unique lived experiences of perinatal death. These men have the right to culturally competent care and effective support. This study aims to explore culturally and linguistically diverse (CALD) men's experiences following perinatal death, and to identify specific support needs and barriers to support that CALD men face following perinatal death. This research may help to inform support organisations and healthcare professionals about how to best provide support to CALD men following perinatal death.

This study aims to explore this topic from the perspective of CALD men, leaders in their communities, and healthcare service providers who provide support and care following perinatal death.

Participation in this project is completely voluntary. If you agree to participate, you can withdraw from the study at any time.

Participants will receive a $50 shopping voucher as a thank you for your time.

You are eligible to participate in this research if:

• You are a CALD man with experience of perinatal loss in Australia ( perinatal death is defined as 20 week’s gestation to 28 days after a live birth)
• Your experience of perinatal loss occurred in Australia in the last 10 years
• Your experience of perinatal loss did not occur within the last 6 months (to minimise distress)
• You are over 18 years of age
OR
• You are a leader within a CALD community
OR
• You are a healthcare professional or service provider with experience of working with a CALD man with experience of perinatal loss

If this study applies to you, please contact Thom Pearson [email protected] or call Dr. Clemence Due on 08 8313 6096 to arrange an interview.

In the interview, we will ask you questions about grief following perinatal loss, for yourself or for men in your community / healthcare practice. The interview will last approximately 60 minutes.

 


HAPP-e

HAPP-e is an innovative international study on the health and quality of life of adults born preterm.

So, what do you need to participate? You must be older than 18 years old and have been born before the 37th week of gestation, anywhere in the world.

To participate, access https://happ-e.inesctec.pt/, register and click the link you receive by e-mail.

It’s that easy and you will be contributing to improving knowledge on adult life after preterm birth! 

All adults (18+) born before the 37th week of gestation are invited to register and fill HAPP-e's questionnaire

 
 

 


PREM-STARS

Researchers at The University of Queensland are seeking premmie parents to share their experiences and needs around their child’s transition to school. If you have a very preterm child between the ages of 3 and 7, please complete their survey here:
 
 
*The researchers have official ethics approval from The University of Queensland (Approval Number: #2020002191). If you have any questions or would like more information, please email [email protected]

 


Fathers Perceptions of Having a Baby in the Neonatal Unit during Covid-19
Have you recently become a dad during the Covid-19 pandemic and was your baby admitted to a neonatal unit or discharged during the pandemic? If you've answered yes, we would like to invite you to participate in this international research survey to explore the perceptions and experiences of fathers of infants who are currently on admission in the neonatal unit or have been discharged during the Covid-19 pandemic. The survey takes 15-20 minutes to complete. 

Survey Link

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