Hadrian's Story, 26 Weeks

Miracle Mum, Nikola shares Hadrian's story.

"Hadrian was born at 26+1weeks via emergency c-section due to early preclampsia and HELLP (Hemolysis, Elevated Liver enzymes and Low Platelets) syndrome. Our little fighter suffered from his first lot of sepsis at two weeks of age, which he was enrolled in the clinical PROTECT trial.

After he recovered from sepsis it was found that his patent ductus arteriosus (PDA) was not closing so we had to be flown to the Royal Children's Hospital in Melbourne at 4 weeks of age for heart surgery. On our arrival there Hadrian took a turn and developed his second and most severe bout of sepsis. During this time he also developed necrotising enterocolitis. We battled for 7 days with both infections and he was finally well enough for surgery. After a week of recovery and then a further week to wean the ventilator and multiple blood transfusions we got to come home.

Everything was looking great until he was diagnosed with premature retinopathy and required general anesthetic for laser surgery. During his recovery of the operation he developed his final round of sepsis and it was discovered that his primary sources of infection came from dilated ureters which was causing urine to flow back into the kidneys.

Once we got better it was a slow and steady journey until his due date and eventual discharge 104 days later. While we went home on oxygen and daily antibiotics, Hadrian continued to thrive!

Currently, we are one month without oxygen and loving being a family. Hadrian still has constant battles with stiffness and overstimulation but he is improving daily and is the most cheeky baby I have ever met."


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