Ziggy's Story, 37 Weeks

Miracle Mum, Kate's heart, body & mind were absolutely broken watching her baby's condition go from bad to worse. She shares the story of Ziggy's fight.

"After a beautiful pregnancy & labour our darling Ziggy was born at 7pm on a Friday evening at 37.5 weeks. He was grunting & quite blue upon arrival, my attempts for him to latch were unsuccessful & he was whisked away for oxygen & observation.

Whilst I was being tended to in a post labour hormonal haze, I thought Ziggy was totally fine, being wrapped and weighed. Ziggy was experiencing PPHN - persistent pulmonary hypertension neonate - resulting in respiratory distress, but the cause wasn't clear. I had laboured in the country so Ziggy was moved into their neonatal unit, given oxygen & was observed overnight by RNSH via videocam.

I was told by Paeds if he didn't improve overnight, we would be flown by helicopter to RNSH for further treatment. I am an eternal optimist, so I thought 'No way will we be going to Sydney in the morning he will be fine & we will be home together'.

Ziggy's oxygen requirements were escalating & the decision was made for us to fly to Sydney. I hadn't slept for 3 days, laboured for 2.5 days & the anxiety of Ziggy's health really set in. The wonderful NETS team arrived at 11am Saturday morning, sedated my beautiful baby, intubated him & we were flown to RNSH. Upon arrival Ziggy was excubated & suffered another round of PPHN. He was intubated once more & then given nitric oxide to open his arteries for oxygen to pass through his little body.

Monday morning arrived; his blood results arrived from country pathology. Ziggy was nearly septic from a fungal blood infection. He was treated via pickline for 2 weeks, on oxygen for 5 days, I didn't hold him for 4 days. My heart, body & mind were absolutely broken. A state I can never completely express. Our stay was quickly brought into perspective by all the families in the unit with tiny babes that were by their bedsides for 30, 50 & some 100 + days.

The day we got the ok to go home was a day of such overwhelming emotion, it's quite difficult to put into words. I'm sure every family who has lived life in the NICU has felt it & can resonate wit it.

My mum took me home a #Miraclemama card to frame, though sadly she passed away when Ziggy was 8 weeks old, I have the card sat on a shelf. Thank you Miraclemama for the platform to unravel & put into words such an overwhelming human experience.

Little (Big) Ziggy is 8.5 months now & absolutely thriving (obviously)."

Want to share your story too?
We welcome every Miracle family story, no matter what stage of the journey you're at.
We encourage those wishing to share their story to submit it below:

Share your family story