Sebastian's Story, 39 Weeks

Miracle Mum, Fiona shares Sebastian's story.

"Sebastian was born at 39+6 weeks on the 10th February 2020, without intervention and we were discharged from hospital without any complications. Within 24 hours of being home we were heading to emergency with a lethargic, non feeding baby. On arrival his blood sugar was critically low and a team of eight doctors stabilised him before he was transferred to NICU for assessments. Sebastian’s oxygen levels started dropping and it became evident he was having seizures. Unfortunately, he was not responding to medical intervention so they had to intervene. There was nothing to prepare us for the 12 days of NICU that were to follow.

Sebastian was placed on brains monitoring, intubated and ventilated, with a central line placed through his revived umbilical cord. He remained in an induced coma for four days until his MRI at seven days old. We were called into a room and given the diagnosis that Sebastian had suffered a stroke with extensive MCA damage to the right side of his brain, including ACA, PCA and two focal spots on the left side. We were given the scary prognosis of left hemiplegia, cerebral palsy, and a guarded prognosis towards his future development. We have never found the cause of his stroke, meaning the chance of recurrence is low.

Today Sebastian has a confirmed diagnosis of left hemiplegia, cerebral palsy, but he is the happiest little boy; he is walking and kicking the soccer ball. He is learning to use both hands together and his speech is slowly developing. His strength and desire to thrive is the most beautiful gift we could ask for."

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