There is an underlying understanding that the care our babies receive today is available as a result of others before them taking part in research and that those who participate in research contribute to improvements in standards of care and long-term quality of life.
In addition to being a participant in a research study, it is also important as the parents and carers of premature and sick babies that we provide a voice and contribute to the design and delivery of trials. More and more researchers are looking for our valued input into their work.
Research happens in NICUs across Australia, and around the world. Every trial that happens within Australian NICUs have gone through very strict protocols and guidelines, had input by NICU parents (like the ones in this Network) and have undergone independent ethics approvals.
As Australia’s largest neonatal consumer organisation, Miracle Babies is able to provide health professionals and researchers access to a very large community of families who have experienced the birth of a premature or sick baby.
Our NurtureNetwork is a community of committed miracle parents and carers who are willing to participate and share their experiences, information and points of view through, mostly, online surveys to help the joint mission of advancing health and outcomes for babies born early or sick.
If you are the parent or carer of a premature or sick baby who has spent time in a Neonatal Intensive Care Unit (NICU) or Special Care Nursery (SCN), or you were born early or sick yourself, and you are passionate about helping to advance the care our babies receive, we’d love for you to join our NurtureNetwork.
You are now part of our valued NurtureNetwork, partnering with researchers to help improve outcomes for miracle babies and their families.