Because this journey needs more than medical care, it needs a community.

We believe prematurity and sickness at birth is a hidden and lifelong trauma that can be reduced through the courage, empathy and understanding of people who have experienced it.

We've been where you are. As parents who have lived the journey with a premature or sick baby and beyond, we ofer the kind of support no medical team can. 

Guidance, steady encouragement and a community that truly understands. We're here to walk beside you, teach you and light the path forward, while empowering you, your child and our entire family. Our community of lived experience is shaping futures and making positive change for today's and tomorrow's generations, to reduce the burden and improve long-term outcomes for years to come.

We bring:

  • A community that can guide and educate - improving the health and wellbeing of the entire family, for a lifetime.
  • A community that supports and nurtures through connection and shared experiences, for the entire journey.
  • A community that is bold enough to use our voices for positive change.

A community to light and lead the way.

We’re here for the entire journey; from a high-risk pregnancy, during a baby’s neonatal stay and well beyond, for a lifetime.

  • Peer Support – in hospital, after discharge and for years after
  • Education through family resources and an online information hub
  • Advocacy, awareness and involvement in research – our voices are influencing positive change

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Guiding Principles

Why we exist and what drives us 

Purpose: 

To improve, support and enhance all lives impacted by a premature or sick birth.

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Vision:

Happy and healthy families reaching their potential.

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Values & Qualities:

Empathy
Community
Commitment
Respect

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Mission:

Working in partnership with families and health professionals, we provide a community of shared experiences, peer emotional support and access to education and evidence-based information. We use our parent voice in research and advocacy to influence positive change. Our life saving and life changing work aims to enhance lives for all to reach their potential.

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