Kylie Pussell Co-Founded Miracle Babies Foundation in 2005 and has been a Board Director since 2009.
After suffering a miscarriage and losing twin babies at 16 weeks, Kylie gave birth to her daughter Madeline at 30 weeks and was diagnosed with Cervical Incompetence. Madeline was cared for in Liverpool Hospital’s NICU for 6 weeks. Two years later, following a further miscarriage, Kylie delivered twins at just 25 weeks. Both were resuscitated at birth and cared for by the NICU. Sadly Kylie’s son Marcus passed away due to complications from his extreme prematurity. Her daughter Scarlet required ventilation and surgery. Scarlet was cared for in the NICU at Liverpool and Westmead Children’s Hospital and was discharged home just before her due date, 4 months later. Kylie’s son Liam was born at 38 weeks through planned c-section following a transabdominal cerclage.
Kylie, a qualified counsellor, has played an integral role in the expansion of the Foundation’s program NurtureTime, the introduction of Miracle Babies Foundation to hospitals nationally and the development of national resources. She developed and implemented Miracle Babies Foundation’s successful volunteer program, designing National Volunteer Induction and Training with TAFE NSW. Kylie was selected in the inaugural The Growth Project in 2015.
Kylie delivers presentations and forums on the Foundation to community and corporate, both nationally and internationally and shares her personal journey with her children, delivering parent support and positive change for premature and sick babies. Kylie highlights the needs for parents and families in the NICU and the years ahead. Kylie leads support for our bereaved families and assists families and educational institutions in the learning, social and emotional challenges some of these miracle babies experience in the early years, school aged years and adulthood. Kylie has been an instrumental leader in many new services the Foundation delivers, most recently Nurture ‘E’ – The EEE Impact. This information hub is designed to assist families through different life stages of their growing and developing child beyond the baby, infant and toddler years and supporting families through primary and high school right through to adulthood. Nurture E - The EEE Impact has been created in collaboration with parents and health professionals to provide families with Evidence, Education and Empowerment.
She is CEO of the Foundation and is passionate in driving the expansion of services and resources across Australia for all families to be supported, educated and empowered.
Kylie was Secretary of the Board from 2009 to 2017 and appointed as CEO by the Board in 2017.
In July 2019 Kylie became a Founding Committee member of GLANCE and in December 2019 was appointed to the Chair Committee of GLANCE.
During 2019 and 2020 Kylie was a member of the Working Group on the ICHOM Preterm and Hospitalized Neonates Standard Set and in September 2020 was named Western Sydney Women – 2020 Community Woman of the Year. Kylie was also awarded ‘Highly Commended’ in the Western Sydney University Women of the West Awards for Community 2020.
In July 2021 Kylie became a member of the World Prematurity Day Parent Advisory Board and the World Prematurity Day Global Planning Group. In September 2021 she joined NSW Health Agency for Clinical Innovation as a consumer representative on Paediatric and Neonatal Clinical Care Task force and the ACI Maternity and Neonatal Executive Committee. Kylie is a parent representative on numerous research projects, a previous member of the PSANZ Perinatal Palliative Care Special Interest Group and current member of the PSANZ Perinatal Ethics Special Interest Group.
In April 2022 Kylie was awarded as a Finalist in the NSW Women Of The Year Award – Woman of Excellence. In May 2022 Kylie presented the Nurture ‘E’ – The EEE Impact information hub at the global EFCNI Parent Summit in Germany. In 2022 she was invited to join the Advisory Board of parent organisation Prematuridade in Brazil. 2022 Kylie co-authored the article Impact of current Australian paid parental leave on families of preterm and sick infants published in the Journal of Paediatric and Child Health. Kylie also contributed to the published book Neonatal Nursing: A Global Perspective.
Kylie is a consumer representative on the National Preterm Birth Prevention Collaboration and in 2023 was elected to the EFCNI Parent and Patient Advisory Board.
Follow Kylie on: