Active Research Surveys
SUPPORT
Are you the parent or carer of a miracle baby? Listed below are active research surveys that need your voice!
Research happens in NICUs across Australia, and around the world. Every trial that takes place within Australian NICUs has gone through very strict protocols and guidelines, has had input by NICU parents and has undergone independent ethics approvals.
Your experience, story and journey with your miracle baby or babies is valued. By completing any of the surveys below, you are assisting researchers on the joint mission of advancing health and outcomes for babies born early or sick.
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If you are a researcher, click here to submit a survey
Active Research Surveys:
Most Premature Babies
If you were an extremely premature infant or care for someone who is, INPRES wants to hear from you.
We encourage you to take part in the survey and share your questions about the most premature babies to help guide future research. It will take about 10 minutes to complete and is open to anyone with a personal or work-related connection to premature babies born before 25 weeks of gestation.
A survey has been launched by the International Perinatal Research Partnership (INPRES) to identify the top 10 research priorities for the most premature babies born before 25 weeks of gestation (about 4 months early) in Australia and the UK.
Quality of Kids’ Lives Study – Finding the best way to measure kids’ health
Are you the parent, carer or guardian of a child or young person aged 2-18 years old?
We need your help to take part in an important study the Murdoch Children’s Research Institute is conducting about measuring the health and wellbeing of children and young people. Findings will be used to evaluate new treatments for kids. Taking part will involve completing two surveys.
Interested in participating or want to know more?
Visit: https://redcap.mcri.edu.au/surveys/?s=X87R9Y84HF&prem=1
HAPP-e
So, what do you need to participate? You must be older than 18 years old and have been born before the 37th week of gestation, anywhere in the world.
To participate, access https://happ-e.inesctec.pt/, register and click the link you receive by e-mail.
It’s that easy and you will be contributing to improving knowledge on adult life after preterm birth!
All adults (18+) born before the 37th week of gestation are invited to register and fill HAPP-e's questionnaire
Fathers Perceptions of Having a Baby in the Neonatal Unit during Covid-19
Have you recently become a dad during the Covid-19 pandemic and was your baby admitted to a neonatal unit or discharged during the pandemic? If you've answered yes, we would like to invite you to participate in this international research survey to explore the perceptions and experiences of fathers of infants who are currently on admission in the neonatal unit or have been discharged during the Covid-19 pandemic. The survey takes 15-20 minutes to complete.
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